What is Neurofibromatosis?
Correct answer: Tumors in the nervous system
Goodboy
Life can be so cruel, be grateful for your health because so many don't .
Hdrydr56
I am sorry for the people who have this. I wish you were better than ever.
QueenHamish
My nan had this, had many tumours removed from limbs and on brain but otherwise healthy. She lived until 89, when she sadly succumbed to alzheimer's complications
Colleen
I was blown away when I saw this question as I have neurofibromatosis
EvilChef23
Colleen, as was I. I also have it. I was diagnosed at age 20. which I found odd, that my family doctor didn't know about it.
little b
my nervous system is fine
Brandy
very good question wit explanation. more needs done as far as research
Brandy
yoli, mine started at 11
Brandy
Player #32787452, same here
Brandy
EvilChef23, I was diagnosed at 11. as common as it is , it is sad that doctors do not know more about it.
Brandy
Hdrydr56, as someone with NF this is very offensive. it is not as bad as it sounds. we don't want sympathy. we are no different than anyone else.
sam
EvilChef23, some doctors are really good and others not so good. I had a great doctor who was not only a Md, but also a licensed holistic doctor. he listened carefully and helped in so many diagnosis
sam
Colleen, so sorry
Player #32787452
yoli,
I also have type 1 just getting more lumps all the time.
doesn't stop me doing anything though
yoli
Colleen, I also have them, they started growing at the age of 7 year. I'm now 31 and have accepted that I have them.
jhenevie💋
My pituitary post surgery makes my life even more harder,coz i can't do the things i want to work,
jhenevie💋
Totally agree i undego transphenoidal surgery for pituitary,2018
Player #3418380
Colleen, same here
RICK-N-BACHER
Tina's twin, Google it